Right? Did you see that headline? Subject line...whatever....Did ya see it? A years worth of drugs? In one day??! That is unbelievable! Seriously...if I were you...I would totally not believe it. I mean, I knew that medicine was advanced....but are you kidding me? That, my friends, is some crazy stuff.
So before I get into that, for the record, that image above had nothing to do with my illness. I found that in a copyright-free image library. They are not mine. I mean for all I know a GG 606 pill is something you give to, gosh, I dont know...like what? Like a manatee? But what would they need pills for? I mean seriously? They are the puppies of the sea! Being all happy and stuff! No pills for them. Just seaweed. Oh yeah, so in the end...i have no idea what the sam hill those are....
Wow...so full disclosure here...this story may not be as amazing to you as it was to me. But ever since I was diagnosed, medicine and the human body continue to astound me.
So part of my Neurosarcoidosis caused my bones to get kinda soft I suppose...and as a result I have two collapsed vertebrae. Oh AND on top of that, the steroids that I need for inflammation also cause weakness in bones. Thus, as a result, I have Osteoperosis, I am about an inch and a half shorter that I was a year and a half ago and I have to worry about breaking bones. Not so cool.
Yeah so anyway I have this big friggin' list of drugs I gotta take every day. I know...I have whined about them before...they kinda keep me alive, etc. etc. Well there is one called Alendronate Sodium and it really makes you realize how far you are willing to go...or in this case NOT go...for convenience.
So it goes like this....Alendronate Sodium gets into your system...bonds itself to your bones like, I dunno, some sort of bone-bonding thing...and the end result is that it helps them grow faster! I am also on a good dosage of calcium each day and prescription Vitamin D. And it's not like I'm a total vampire! I mean I get out into the sun a good bit.
So lets say you wake up and it's time to take your Alendronate Sodium!
Alendronate Sodium: Okay you have to take it first thing in the morning!
Eric: No prob. Morning it is. (When in actuality I am kinda miffed at Alendronate Sodium for already dictating my morning vs afternoon vs night time medication time. But I'm cool. I'll play along and see where this leads.)
AS: Ooooooooh yeah and I think I told you.... No food or drink for approx an hour afterward.
E: Oh, no. You didn't tell me that Mr. Alendronate Sodium.
AS: Oooooooh yeah I'm pretty sure I did. I mean, even if I didn't, it's in the brochure.
E: Brochure? You mean these instructions that they print in microtext and glue to the bottle? That brochure?
AS: Yeeeeeahhhh...that's right. Those are tiny huh?
E: (More than a little miffed now. AS seems pretty lame and he is seriously buggin' me.)
SO....that's totally cool AS (I say through clenched teeth.) I'll just go back to bed for another hour! (I felt kinda tough like...in your FACE Alendronate Sodium!!! I gotta admit...it was kinda a moment for me.)
AS: Oooooooh yeah and I think I told you...you have to remain sitting up or standing during the whole time. Killer, right?
So right from the start Alendronate Sodium and I had a rocky relationship. Sometimes I would take them...other times I would take them less than that.
THEN I get a new Endocrinologist and he says "Well Eric, due to your illness and symptoms, I am certain that insurance would cover the infusion treatment.
What is the infusion treatment you may ask?
I make an appt at a Rheumatology Lab. This is a whole new "Ology" for me! I mean your pal Eric has Neurologists...Pulmonologists...Endocrinologists...(The Endos get kind of pissed when you mistakenly call them Entomologists....bug people....but hey...live and learn!)
So 8AM I head on in....and they have a few recliners in there with IV stands next to them. And suddenly I realize I am the only non-post menopausal woman there! I mean...I'm a dude soooooo...
So they make sure you have taken a bunch of Tylenol before you get there. Then they hook you up. The drug is called Reclast. Here is just a bit about it:
Unlike other common bisphosphonates that are taken by mouth, Reclast bypasses the stomach because it is an infusion into the bloodstream. Bone is a living tissue constantly being remodeled. Bisphosphonates specifically act on bone cells (osteoclasts) to inhibit bone resorption and turnover activity and reduce progressive bone loss and risk for fracture.
Science..am I right?
Common side effects may include flu-like symptoms, headache, nausea, vomiting, diarrhea, joint, bone, or muscle pain.
Okay....so no biggie. I even asked my Endo about this as well as the Rheumatologist and they both said that these symptoms don't even happen any more and that is a million to one shot that I would feel these "Flu Like Symptoms." Hmmmmmm....sounds promising...
So I didn't go into work that day because I didn't know how off I would feel. But as the day progressed...nothing! It was all good! (insert a very happy Eric here!) But the next morning my million to one shot came true. (Seriously...I need to play the lottery! This type of Neurosarcoidosis is a million to one....side effects are a million to one...those odds no longer comfort me.)
It really was/is a miserable cold. Shivers....sweats....headaches...achey bones...sniffles..and it isn't even a REAL COLD! So I feel like crap...Cindy is awesome and just putting up with Eric getting home at 5:30 and wanting to be in bed by 7:30...it just hits you.
So this is supposed to last 3-4 days...I am on day 3 and it MIGHT be subsiding. I can't really be sure. But the miracle drug of one day in one year is turning into a week. And I suppose now that I know that Eric IS the million to one shot...next June when I go in...I'll be prepared. It is still worth it I think.
Wow....you came a long way just to hear Eric gripe about a cold. I feel kinda bad. Like I am leaving you hanging. I mean look above here...that's a lot to weed through just to get to a pretty mediocre ending. I gotta apologize. To make it up to you....here is a bunch of adorable kitties mewing....It is SO CUTE!